Tag: EDS

• Fighting for Answers: My Ongoing Battle with Suspected POTS, EDS, and Hypermobility (Part 2)

  

  How do you stay proactive when advocating for yourself? Join me as I navigate the ongoing battle with suspected POTS, EDS, and hypermobility.

  ❄️Siearra Frost❄️

  July 28, 2025

  advocacy, chaos, Medical Related, My Personal Journey

  advocacy, blog, Blood pressure, BPM, chaos, dizzy, EDS, Ehlers-Danlos Syndrome, electrolytes, excessive sweating, fainting, health, heart rate, heart rate viability, heat intolerance, HRV, Hyperhidrosis, Hypermobility, IBS, Life, Mental Health, Postural Orthostatic Tachycardia Syndrome, posture, POTS, salt, tachycardia

• Fighting for Answers: My Ongoing Battle with Suspected POTS, EDS, and Hypermobility (Part 1)

  

  Ever wondered what happens when your advocacy efforts hit a wall? Discover the challenges and triumphs in my journey with suspected POTS, EDS, and hypermobility.

  ❄️Siearra Frost❄️

  July 27, 2025

  advocacy, Medical Related, My Personal Journey

  advocacy, blog, Blood pressure, BPM, chaos, dizzy, EDS, Ehlers-Danlos Syndrome, electrolytes, excessive sweating, fainting, health, heart rate, heart rate viability, heat intolerance, HRV, Hyperhidrosis, Hypermobility, IBS, Life, Mental Health, Postural Orthostatic Tachycardia Syndrome, posture, POTS, salt, tachycardia

• The Impact of Gaslighting in Medicine on Patient Health a Personal Experience

  

  This is a longer post yes, however the story it tells is one that needs to be told. Even now I barely scratch the surface and that is so far from okay that I have no words for what I touch on.

  ❄️Siearra Frost❄️

  July 20, 2025

  advocacy, Medical Related, My Personal Journey, Random Information, Random life topics, the heart beat of change

  ableism, ADHD, advocacy, angry, anguish, anxiety, ASD, assault, AuDHD, bilateral, carpal tunnel, carpal tunnel bilateral release, carpal tunnel release, chaos, coat hanger, Comorbidity, cost of medical needs, cptsd, dangerous, deadly, defeat, delaying medical care, denial, denial of care, denial of second opinion, depression, discrimination, dizzy, doctor, doctors, EDS, Ehlers-Danlos Syndrome, electrolytes, emboli, embolism, Emergency Room, ER, fear, fighting for care, gender discrimination, Hate, headaches, health, high risk, hurting, Hypermobility, Hyponea, I shouldn’t need to be my own doctor, ignored, ignored red flags, instability, Life, life threatening, luck, Masking, medical discrimination, medical professional, medical research, Mental Health, migraines, miracle, misdiagnosed, no big deal, not a party trick, not covered, not neat, not sick enough, overwhelmed, Pain, Postural Orthostatic Tachycardia Syndrome, posture, poverty, ptsd, pulmonary emboli, racism, red flag, refusal, research, salt, self denial, self-harm, Sleep Apnea, Sleep Hyponea, surgery, tachycardia, terror, to long to list all symptoms, to many symptoms, to many tags, trauma, wheelchair, wrong, zebra diagnosis